Table 1 Respondent demographics
Characteristics | Respondent, N (%) | |
|---|---|---|
Non-infusion characteristics | ||
Age | 0–17 years | 40 (11%) |
≥18 years | 326 (89%) | |
Experience with IgG prior to SCIG | Ig-naïve | 138 (38%) |
Ig-experienced | 226 (62%) | |
Experience with SCIG | < 2 years | 129 (35%) |
≥2 years | 235 (65%) | |
SCIG transition decision driver | Prescriber | 102 (47%) |
Patient | 96 (45%) | |
Other | 17 (8%) | |
SCIG treatment decision driver | Prescriber | 238 (65%) |
Patient | 95 (26%) | |
Other | 33 (9%) | |
Time on treatment | < 2 years | 76 (21%) |
≥2 years | 290 (79%) | |
SCIG training characteristics | ||
Training location | Hospital | 11 (3%) |
Doctor’s office | 55 (15%) | |
Home | 274 (75%) | |
Other | 23 (6%) | |
Who conducted training | Clinical staff | 43 (12%) |
Specialty pharmacy | 278 (78%) | |
Nurse | 30 (8%) | |
Other | 6 (2%) | |
Number of training sessions required | 1–3 | 291 (80%) |
≥4 | 71 (20%) | |
Length of training sessions | ≤2 h | 225 (63%) |
> 2 h | 131 (37%) | |
Competence of trainera | 1–5 | 72 (20%) |
6–7 | 290 (80%) | |
Knowledge of trainera | 1–5 | 99 (28%) |
6–7 | 261 (72%) | |
Ease of trainingb | 1–5 | 103 (28%) |
6–7 | 263 (72%) | |
Confidence after traininga | 1–5 | 110 (30%) |
6–7 | 251 (70%) | |
Satisfaction with quality of traininga | 1–5 | 76 (21%) |
6–7 | 286 (79%) | |
Barriers to training | No | 245 (82%) |
Yes | 53 (18%) | |
SCIG infusion parameters | ||
Preparation duration | ≤20 mins | 196 (54%) |
> 20 mins | 168 (46%) | |
Median [IQR] mins | 20 [15, 44] | |
Actual infusion time | < 2 h | 161 (44%) |
≥2 h | 203 (56%) | |
Median [IQR] mins | 120 [80, 150] | |
Complete infusion time (inc. prep and clean-up) | ≤3 h | 237 (65%) |
> 3 h | 127 (35%) | |
Median [IQR] mins | 155 [115, 209] | |
Frequency of infusionsc | > 1 per week | 28 (8%) |
Weekly or up to every 2 weeks | 284 (79%) | |
Every 3 or 4 weeks | 48 (13%) | |
Number of sites per infusion | 1–3 | 212 (58%) |
≥4 | 152 (42%) | |
Product concentration | 10% | 118 (33%) |
20% | 243 (67%) | |